Mixed reax from parents on peanut allergy advance
By HOLLY RAMER
Associated Press Writer
CONCORD, N.H. (AP) — One mom says she’d be first in line for a promising treatment that exposes children with peanut allergies to tiny amounts of peanut flour. Another remains fearful, with the painful image of her son’s face blown up beyond recognition still fresh in her mind.
While some parents of children with life-threatening peanut allergies see a glimmer of hope in a recent study suggesting a possible cure, others remain dubious that it will ever change their children’s lives.
“It’s like when we were growing up 20 years ago and we saw the flip phones on Star Trek — that was going to be the wave of the future, but we thought that would never happen,” said Eva Stilkey of Raymond, N.H. “It’s great, but those of us who live with the disappointment and the reality of it, you kind of protect yourself. We really do hope it happens someday, but we don’t want to have false hope.”
Earlier this week, scientists announced the findings of a small study that involved giving a handful of highly allergic children tiny amounts of peanut flour daily for more than two years. Gradually, the children became less sensitive, and so far, five show no remaining sign of the allergy.
Larger studies are beginning to see if the treatment works for more people and how long it lasts. But it was big news for the nearly 2 million Americans who are allergic to peanuts.
Stilkey’s son, Nicholas, who turns 5 on Friday, was 2½ when a single bite of peanut butter pie sparked a severe reaction.
“We had him spit it out, and when he did, when he lifted his head back up. I couldn’t even recognize him. His face was blown up to a point where there was no separation between his nose or his lips. He was stuffing his hands frantically down his throat trying to breathe,” she said.
Stilkey considers the study participants heroes, but she’s in no hurry to follow in their footsteps.
“I am full of complete admiration for the parents and those children who put themselves through that because I know as a mother, I would be absolutely fearful to try to put Nick through that, just because I’ve seen what happened to him,” she said.
Tamara Leibowitz, who runs a support group for parents of children with food allergies in Portsmouth, N.H., said it would be a leap of faith to subject her son to small doses of what essentially has been considered poison, but “I think we’d jump at the chance.”
“My son would be terrified at the beginning, but he’s been paying attention, too, even at 9 years old, and he’s really encouraged by what he sees,” she said, describing her own reaction as “cautiously optimistic.”
In Orange County, Calif., Louise Larsen said she, too, would seek out the treatment if it becomes available.
“Would I put my child through that? Sure, if I sat right next to her, and we went very slowly and it was in a very controlled setting,” said Larsen, whose 12-year-old daughter is allergic to peanuts. But she said she would never be completely convinced that the allergy was gone.
“Even if they did conclude she no longer had any allergy, as her mom, I’m going to send an EpiPen with her until she goes to college,” she said, describing the portable injections used to treat anaphylaxis, a severe allergic reaction marked by swelling of the throat or tongue, hives, and breathing trouble.
Another California mom, Lori Fletcher, would be just as eager to try the treatment on her 6-year-old son, though she and other parents worry that publicity over the breakthrough would create more misconceptions about food allergies. She doesn’t want people who have heard the news to assume that it means her son now can have “just a little bit” of food containing peanuts. “We still need to be avoiding it,” she said.
But she also found the news inspiring, and plans to use it to promote an upcoming fundraising walk.
“I hope people take from it that if we do raise money, we can get a treatment fairly soon,” said Fletcher, of Danville, Calif.
In the meantime, parents said they will remain vigilant, obsessively checking each food label and ensuring their children’s safety at home and school.
“Every time you think you finally have come to a point where you can sit back a little and trust the school has everything in place, you get the phone call that someone has brought this in by mistake,” said Stilkey.
Lori Pelletier-Baker, of Concord, N.H., hasn’t faced that situation yet because her 4-year-old daughter isn’t in school, but kindergarten is just around the corner.
“It is a constant weight that I think everybody, including Kaleigh, carries on their shoulders,” she said. This week’s breakthrough doesn’t lessen that weight, she said.
“There’s that piece of me that thinks, ‘Wow, that’s so amazing!’ But the reality is that it may take a long time to reach us,” she said. “I’m not going to give up hope, but I know that things aren’t going to change any time soon.”
Copyright 2009 The Associated Press.
Don’t just talk to your toddler — gesture, too.
By LAURAN NEERGAARD
AP Medical Writer
WASHINGTON (AP) — Don’t just talk to your toddler — gesture, too. Pointing, waving bye-bye and other natural gestures seem to boost a budding vocabulary.
Scientists found those tots who could convey more meaning with gestures at age 14 months went on to have a richer vocabulary as they prepared to start kindergarten. And intriguingly, whether a family is poor or middle class plays a role, the researchers report Friday.
Anyone who’s ever watched a tot perform the arms-raised “pick me up now” demand knows that youngsters figure out how to communicate well before they can talk. Gesturing also seems to be an important precursor to forming sentences, as children start combining one word plus a gesture for a second word.
University of Chicago researchers wondered if gesturing also played a role in a serious problem: Children from low-income families start school with smaller vocabularies than their better-off classmates. It’s a gap that tends to persist as the students age. In fact, kindergarten vocabulary is a predictor of how well youngsters ultimately fare in school.
One big key to a child’s vocabulary is how their parents talked to them from babyhood on. Previous research has shown that higher-income, better-educated parents tend to talk and read more to small children, and to use more varied vocabulary and complex syntax.
Do those parents also gesture more as they talk with and teach their children?
To see, university psychology researchers Susan Goldin-Meadow and Meredith Rowe visited the homes of 50 Chicago-area families of varying socioeconomic status who had 14-month-olds. They videotaped for 90 minutes to count both parents’ and children’s words and gestures. Quantity aside, they also counted whether children made gestures with specific meanings.
This is not baby sign-language; parents weren’t formally training their tots. Instead, they used everyday gestures to point something out or illustrate a concept. A child points to a dog and mom says, “Yes, that’s a dog.” Or dad flaps his arms to mimic flying. Or pointing illustrates less concrete concepts like “up” or “down” or “big.”
The researchers found an income gap with gesturing even in toddlerhood, when children speak few words.
Higher-income parents did gesture more and, more importantly, their children on average produced 25 meanings in gesture during that 90-minute session, compared with an average of 13 among poorer children, they reported in the journal Science.
Then the researchers returned to test vocabulary comprehension at age 4½. The poorer children scored worse, by about 24 points. Researchers blamed mostly socioeconomic status and parents’ speech, but said gesturing contributed, too.
It’s not just that richer parents gesture more, stressed Peggy McCardle of the National Institute of Child Health and Human Development, which funded the work.
“It’s that there’s a greater variety of types of gesture that would signal different types of meaning,” McCardle said. “It sure looks like the kids are learning that and it’s given them kind of a leg-up.”
The study doesn’t prove gesturing leads to better word-learning, but it’s a strong hint. Now scientists wonder if encouraging low-income parents to gesture more could translate to toddlers who do, too, and in turn improve school readiness.
“It wouldn’t hurt to encourage parents to talk more and gesture more,” Rowe said.
Copyright 2009 The Associated Press.
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